The Epilepsy Society is the  working name of The National Society for Epilepsy which is the largest medical charity for the care and treatment of people with epilepsy. They have a telephone help line on +44 (0)1494601400 from overseas or 01494 601400 in the UK



Epilepsy Action is the working name of the British Epilepsy Associaton the largest membership epilepsy charity in England and Northern Ireland. They have a free help line on 0808 800 5050 from the UK or +44 113 210 8850 from other countries. They have an e-mail help service on This email address is being protected from spambots. You need JavaScript enabled to view it.orfollow their facebook page


Epilepsy Research UK is a British medical research charity dedicated to curing epilepsy. In March 2007, the Epilepsy Research Foundation merged with the Fund for Epilepsy to become Epilepsy Research UK. ERUK is the only national organisation exclusively dedicated to funding research into all areas of epilepsy. 


Dravet Syndrome UK is an independent UK charity (registration number: 1128289) dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support

Sturge Weber UK is a voluntary support group for families and adults affected by Sturge Weber syndrome, a rare neurological disorder


SUDEP Action formerly Epilepsy Bereaved which was formed in the early 1990s to provide information about S.U.D.E.P (Sudden unexpected death from epilepsy) which is responsible for about one thousand fatalities each year. They give help and support to the bereaved and campaign to ensure that the extent of the problem is understood at all levels of government

Epilepsy Scotland is one of the main epilepsy charities in Scotland and maintains a help line on 0141 427 5225


The International Bureau for Epilepsy has members in many countries and offices in Heemstede in the Netherlands andDublin in the Republic of Ireland. The bureau publish information and arrange conferences in many parts of the world at which delegates can learn about epilepsy treatment and social issues.They also publish various information including a useful travel bppklet which can be downloaded here



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